Thursday, March 17, 2011

New CCSVI Detection Technique from Dr Zamboni

Wow, Dr Zamboni just keeps pushing forward with ways to help the MS community. One of the issues with CCSVI detection to the point has been the detection of a blockage by neurologists. So, you have many MS patients being misdiagnosed because of a flawed detection process. Now, Dr Zamboni has figured out a way to take the user error out of the equation. He has come up with a process that records blood flow through a plethysmography machine to see if you have blockage. This method eliminates the operator's special training dependency, and makes detection so much quicker and easier.

Here are the details I have right now. The patient wears a collar that measures the volume of fluids in the neck. At first, the patient sits upright in a chair. When the volume stabilizes, the chair is aggessively tilted and the patient is in the supine position. The volume is continuously measured, and this position increases the volume in the neck. Again, the patient is agressively tilted back into an upright position and whamo, an MS patients blood flow takes a long time to decrease again. A normal subjects blood flow decreases almost instantly.

This is so much simpler and more accurate to see if a patient has CCSVI present or not. After they get a positive that the patient has blockage, then they can use doppler and see what extent the blood flow is impeded. This is going to be so much simpler and more effective in diagnosing since it will remove the user error. This is literally a push button method of testing, which should in turn make the whole diagnostic process easier and more reliable. Thank you Dr Zamboni for continuing to find new and creative ways to help MS sufferers. I am so grateful for men like Dr Zamboni and Dr Swank for not giving up when the medical community pushed back on them and tried to disprove their theories. I will keep my eyes open for a diagnostic center that begins to use this technique, and have my wife and daughter tested.

Thursday, March 3, 2011

Lasting Effects of Being Blind with Multiple Sclerosis

This last week my wife went in to get her eyes checked for the first time in a while. The poor Optometrist really didn't have a clue about MS or the condition of her eyes. When we explained to him that she had been blind four times, had a retina detachment with a buckle, and how one of her eyes is dim, he seemed a little overwhelmed. It is almost humorous to see doctors that don't have any kind of background in MS. He looked her eyes over and started the process of getting her a prescription, and we were happy that her eye sight hasn't changed much from the last time she had her eyes checked.

With the damage that has been done to her eyes, it is no wonder he couldn't get 20/20 vision in both eyes. Her left eye he was able to get to 20/20 even though she has gone blind in that eye, and we know that there was damage. She sees pretty well out of that eye, with full peripheral and good depth perception. The right eye is a different story. With the times she's gone blind in it, her optic nerve has apparently been damaged. She can see, but it is half the brightness. He was able to get her to 20/60 in that eye, and I know she has some issues with night blindness and peripheral in her right eye. She is still blessed to be able to see out of that eye as well as she does, and we are hoping her new prescription will help even more with some issues she is having.

In both eyes, she has gone completely blind for days, and then the eye sight came back through using steroid drips. This is one of the few times that we use any type of drugs to treat her MS, and we both feel it has saved her eyesight. I have had a few questions about whether you can get your eyesight back if you've been blind with MS, and my wife is a living testimonial to that. She doesn't see great out of her right eye, but her left eye is still normal. We also found out that she has some issues seeing colors. The doctor ran a few simple color tests, where they have letters or numbers in color on a page with other dots or designs, and she had a hard time seeing very many of them. Yes, the MS has affected her vision, but she is so happy that she can still see and enjoy her eye sight. Her few bouts with going blind have damaged her eyesight some, but overall we are very pleased with how well she can still see.